The Clinic
My little dude has a genetic condition called Velo Cardio Facial Syndrome which I first mentioned here.
Part of this deal is a sub-mucal cleft palate which is a fancy way of saying his speech is a bit hard to understand, notwithstanding almost three years of speech therapy (and the fact that he's 5 and says crazy arsed stuff anyway).
So yesterday Henry and I spent five hours here:
He saw an audiologist, a specialist speech pathologist, a Ear Nose Throat Surgeon and a Plastic Surgeon who specialises in small people's palate reconstruction.
I saw a coffeeologist which was probably my highlight.
Henry, still obsessed with Disney Pixar Cars, got two new cars to see him through:
He had to have a videofluoroscopy which is this cool real-time xray looking at palate movement and the structure of the mouth. In order to see the pharyngeal walls clearly, they had to inject something called Barium up Henry's nose (about the consistency of thin toothpaste) which he was remarkably tolerant about.
Bennoss
September 25, 2009 at 1:41 pmhmmmmm… cars. sounds like a movie i could get.
if i push this button here…. and click that button there…. annnnnnddddddd, presto! 😉
good luck with whatever you decide to go ahead with.
B.
Alex N
September 25, 2009 at 6:43 pmOh, Henry you are a star! On so many levels! xxx
Michelle
September 26, 2009 at 12:32 pmI had to do a barium swallow once – it was fairly horrendous. I can’t imagine having it up my nose! What a great boy to not complain. 🙂
He’s def a budding photographer!
Alex N
September 26, 2009 at 11:02 pmwow what a great guy is the young Henry thinking of you as you make up your minds lots of love from Tante Hilaire xxx